So since April I haven’t managed more than about 3 days dialysing at home. I am back to travelling to The Royal 5 times a week to the Home training unit. Some days I get one needle in, most days I get none in and the nurses have to take over. Frustrating is an understatement.
Everytime I have a procedure to try and fix the graft it moves and I have to change the way I needle. It also becomes really tough and the pressure that has to be used to get the needles in is almost unbearable.
Friday was a particularly bad day, 12 attempts in total to get the needles in. I don’t mind needles, I’m not needle phobic but 12 seperate stabs of 16gauge dialysis needles made for not a very happy Holly. There were tears, from me, Mum and also the 2 nurses looking after me (think it was because I was upset – it just shows how much they care).
My arm has been pretty tender since but I’m still managing to dialyse through it. I feel like saying come and take the machine away from my parents house. I feel like its such a waste and also a tease it sitting there when I can’t use it. Once I got home I realised the true benefits of Home dialysis and being in charge of my own care, now I feel its been snatched away and my life is back revolving around hospital visits again.
An emergency scan on Friday showed the narrowing is back with a vengeance so no doubt I will be called in for another ballooning procedure to try and sort it.