So we all finally had our long awaited holiday abroad to Crete. You may remember last year it had to be cancelled as I was so poorly and they didn’t want me to dialyze abroad and catch an infection which would put the pending transplant at risk!
We had a lovely holiday, however it was tainted by the fact I was a usual drama queen and ended up needing to see the hotel doctor and a trip to hospital. I thankfully was only in one day. A blast of IV antibiotics, 2 lots of painkillers, some fluid, a scan and a course of oral antibiotics later I was allowed on my way. I can’t fault my treatment, however it is super scary being in a foreign hospital where only a few of the doctors speak English.
Their diagnosis was a cyst on my old transplanted kidney, funny that as when I returned both my kidneys and ovaries were clear of cysts. My pain eventually went and I returned to work after my holiday (I skipped that big news, I have gone back to work just part time and I am loving it.)
The pain was still niggling me a week later and when I started getting a temperature and not feeling myself I knew that something wasn’t right. Sepsis was mentioned along with the return of the CMV, I was kept in hospital for 5 days and the final diagnosis was nephritis in my old transplanted kidney. The pain has thankfully gone, it was horrendous, I have never had pain like it.
But what has happened now is that because of the infection my new transplant has taken quite a bit of a hit and lost quite a bit of function. Safe to say it is a worrying time (I haven’t really slept properly which isn’t helping the fact I don’t feel I am back to myself after the infection yet). The consultant isn’t worried yet but is in his words “slightly concerned”.
They are keeping a close eye on me, since discharge last Thursday I have been back 4 times and I am back a further 3 more times before next Wednesday. A change in my tablets, lots of fluid and continuing with antibiotics will hopefully do the trick and I won’t need the biopsy of my new kidney that they keep mentioning. The care I am receiving is second to none and I am in safe hands. I managed a bit more sleep last night now that we have a plan in place.
I am just disappointed I am off work so soon after returning! I was enjoying it so much. Hopefully I will be right as rain in no time.
Sorry I haven’t blogged in a while and sorry it is not a happy one. I promise the next one will be!